Fibrosing mediastinitis is for sure a devastating diagnosis. But for you newly diagnosed…I wanted to share this article!! I know several other individuals who were treated with these injections and are showing encouraging results! I know we might be diagnosed with the same illness but our bodies are so different on the inside that one treatment may work for some while doing nothing for the rest of us.
Either way though, more options are becoming available so please continue to push forward and fight for some form of treatment! I have heard great things about Dr. Peikert who is listed in the following article. My doctors have even visited via email with him so if you have a great medical team but they may not know what the next move should be…have them contact Dr. Peikert! He is usually eager to review scans and give advice. I am so happy for those who will benefit from this and will continue to pray for those who are still searching for the right form of treatment. #hopeforacure #dontgiveup