Rare Disease on the Mighty

Please take some time to read the attached article at the bottom of this blog because I couldn’t have said it any better myself. I am very thankful for all of my friends and family who have supported me through the years with so many procedures, not such encouraging news and just some down right low moments in my life. The prayers and little messages just to say hi or to see how I am doing, truly make a world of difference!! Thanks to all of you who are still standing by me!!💕💕💕       

But…to my husband…the man who is supposed to get my best yet is the first to get my worst on bad days, or after seemingly defeated doctor appointments at the time….thank you for looking past those not so great moments. I don’t get the choice but you do so thank you for CHOOSING to live rare with me!! 


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