While I can, I will

Sorry I’ve been missing in action lately! I wasn’t able to access a lot of my apps or Internet so I finally got a new phone and will do a brief catch-up for you!

Things have been nonstop this past month and I am so grateful that I have been able to participate in life as much as I have been!

We have had a few changes in some personal circumstances which has made Tim extremely busy, even more so than he already has been, and this has also led to more responsibilities on my part…meaning, I really need to pay attention to my symptoms so that I don’t push myself too hard because the last thing we need right now is for either one of us to be out of commission!

Not to mention, kids are wrapping up the school year so we have had end of the year band concerts and orchestra programs on top of all the other daily household stuff. I also volunteered with Skyler and the colorguard team to help out at a color run race which was definitely a lot of fun…personally I just enjoyed the fact that I got to spend time with my teenage daughter!image

We have celebrated birthdays and did a spur of the moment weekend trip to the Omaha Zoo…the first little family getaway in about three years. The weather was perfect, it wasn’t too busy and we all had a lot of fun…



Asher also started tball and how happy my heart has been watching him play!!

By the time all of these activities are done, swim lessons, colorguard events, gymnastics and new dance classes will begin! 

My fm symptoms are still present but not severe enough to keep me down for days. I have finally accepted the fact that if I want to stay involved in things, I need to pace myself and rest along the way! I try very hard not to get frustrated when the fatigue or heart palpitations and shortness of breathe kicks in, which is still several times throughout the day, but I do recognize that is the way my body is telling me I’m getting to my limit so it’s time for me to slow down. 

And, as long as I listen to my body and rest when symptoms arise instead of pushing them off a little while longer, then I tend to be able to keep on with my day.

I also started my new insulin pump with the sensor and I don’t know what to think. It sure is a lot of stuff to keep track of…

The first night I wanted to throw it out the window because it was constantly beeping and vibrating. I was starting to think it might even explode!! It even woke Tim up the first couple of nights because the sensor has to get used to my body so to speak. I do ,however, definitely like the fact that I can just look down at my pump and read what my blood sugar is instead of constantly poking my finger to check.

But, since it is new, I have had a lot of inconsistent readings which has led to too much insulin and I have dropped down into the 30s…which again results in loud beeping and vibrating as the warning flashes across my screen…

My pump will beep to warn me that I am getting low but then I drop so fast that it really doesn’t do me much good. The consistent lows have resulted in me eating at 2 o’clock in the morning to get my blood sugar up and then I feel sick the next day from eating in the middle of the night and from being so low. A not so fun cycle to be in!

Thankfully I am getting the pump figured out and my sensor is stabilizing so the lows are becoming less frequent. I have also changed my settings to alert me sooner when it appears as my sugars are going to drop and then I can grab a snack before they get into the dangerous range.

So, that is what we have been up to the last month or so. I have enjoyed my few months of no doctor appointments but now the follow ups will start to come in June and July. I am not going to stress about what my symptoms could be an indicator of or what news the follow ups might bring.

Instead, I am going to continue to do what I can do while I am able! I am going to savor every day filled with sweet little moments whether it’s playing with the kids and seeing the beautiful smiles on their faces as they talk about their day or simply being able to be outside experiencing the warmth of the sun as I help Tim with yard work. Appreciate the little things…

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s